About Us

Our Mission

 

The Dysautonomia Support Network (DSN) is a U.S. based, 501(c)(3) non-profit organization. Our mission is to empower, educate, and advocate for patients affected by the many forms of dysautonomia and its related conditions. This goal is accomplished through a transparent, collaborative approach that is accessible to both patients and providers. 

 

DSN helps patients and their families through every stage of their journey by supplying them with the support, resources, and education needed to adapt to life with chronic illness. We offer closed support groups and lifestyle clubs that provide our members with a safe space to discuss their conditions, goals, struggles, and joys. Our positive, but realistic international support community helps patients increase their knowledge and confidence so that they feel empowered to challenge themselves and accomplish their goals. Toward this end, we provide scholarships for education and grants for service dogs to enable our members to actualize their dreams.

DSN strives to improve the quality of life of patients worldwide by dispelling the misunderstanding and prejudice that many medically complex patients face in society as a whole. Through our collaborative work with providers and other organizations we seek to increase scientific understanding of dysautonomia and its related conditions in the hope of finding new treatment options.


 

Our Values

DSN is committed to providing an inclusive and accessible environment to all of our members, staff, volunteers, subcontractors, vendors, and clients so that everyone can feel safe and respected. We do not discriminate on the basis of race, color, national origin, religion, age, sex, gender identity, sexual orientation, marital status, veteran's status, disability, or any other legally protected characteristics in any of our activities or operations.

Our History

Founded in 2012 as Dysautonomia Divas by Amanda Aikulola, the Dysautonomia Support Network now runs over 65 groups online, which support patients in 50 countries, and has regional chapters for the United States. To see a full list of our current online support groups and local activities please visit the Find Support page. We offer a variety of special interest groups and different ways to connect, so that everyone has a place they feel they can belong. 

Our open heart logo was designed by our founder, Amanda Aikulola, in 2015. The design was chosen because it is flexible with room for growth, reflecting our mission to empower, educate and advocate for patients. The left half of the heart is red representing support, like an artery that brings life to the heart. The right half is turquoise representing our members and volunteers, like the veins that return blood to the heart. The two halves overlap to remind us that the two are dependent on each other to thrive. The colors are also significant because the color red was used for dysautonomia awareness until it was later changed to turquoise in 2012. We chose to include both colors so that all patients can identify our logo and know they have a place to belong.

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