Who We Are
Dysautonomia Support Network’s Mission is to provide a Community that Empowers and Supports those impacted by dysautonomia to live their best lives.
Being diagnosed and living with dysautonomia can be a life-altering event. Individuals living with dysautonomia – and their loved ones – often require a variety of resources and support. DSN is a group of committed volunteers who are passionate about serving people with dysautonomia because we have been impacted by dysautonomia - as patients, family members, friends, or health care providers.
DSN was founded by an individual who is a dysautonomia patient, caregiver, and medical professional. Seeking information and community with others who have a shared experience, she organized an initial meeting with a small group of individuals living with dysautonomia. What began as an informal meeting in a coffee shop has grown into a thriving 20,000-member-strong non-profit organization focused on bringing support, community, and hope to people around the world who are impacted by dysautonomia.
How We Help
Dysautonomia Support Network works to support and empower those with dysautonomia through education, resources, and community.
Education and Resources
- Support the newly diagnosed through access to research-based information about dysautonomia and its impact on health and lifestyle
- Improve people's quality of life by sharing insights and educational resources on lifestyle management
Create connections that allow members to learn, share, and get involved through...
- special interest groups
Build awareness of dysautonomia within the broader community through our social media platforms, events, and volunteer network
With the support and community of DSN, it is our belief that anyone living with dysautonomia can be empowered with the knowledge, resources, and confidence they deserve to live their best lives.