About DSN

The Dysautonomia Support Network (DSN) is a U.S. based, 501 (C) (3) non-profit organization.  Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation, and Gastric Motility Disorders.

Our leadership team, executive board, volunteer leaders and admins are trained to empower patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic environment and a sense of community in our national and state chapters. We are patient-focused and staffed by volunteers living with these disorders. 

 

The Dysautonomia Support Network does not and shall not discriminate on the basis of race, color, gender, national origin, age, religion, creed, disability, marital status, veteran's status, sex, sexual orientation, gender identity, gender expression or any other characteristic protected by law in any of its activities or operations. These activities include, but are not limited to, hiring and firing of staff, selection or termination of volunteers and vendors, and provision of services. We are committed to providing an inclusive and welcoming environment for all members of our staff, volunteers, subcontractors, vendors, and clients and strive to maintain an inclusive culture, where everyone feels safe.

The Support Network

Founded in 2012 as Dysautonomia Divas, the organization now runs over 65 groups online, which support patients in 50 countries, and has chapters in all 50 United States. The Dysautonomia Support Network encompasses our Global Online Support Group on Inspire or Facebook, which offers online support 24/7; our Caregivers Group, which provides resources and fosters a supportive environment for those caring with loved ones with Dysautonomia; our Military Families Group or DSN Lifestyle Clubs, which unite our members who share common interests outside of their illness; and State Chapters for support in each state in the US.  Local Chapters meet in many states across the US monthly. You may connect to your State Chapter's Facebook group and Google Hangout sessions for local information. 

Our Logo

Our open heart design was chosen because it is flexible, and has room for growth. The red half of the open heart represents support (the artery that brings life to the heart), the turquoise half of the open heart represents our members and volunteers AKA our #dyssupport family(the vein that returns blood to the heart), as our mission is to empower patients to become leaders and advocates.

 

The red overlaps the turquoise half to remind us the two are dependent on each other to thrive. The colors are also significant because some of the first #Dysautonomia related organizations claimed red as the color of awareness. Circa 2012 it was changed to turquoise. Both colors were included so all patients would identify with the colors in our logo, as we are an inclusive organization. We stripe up our logo each February and May in honor of #EDS #HSD and #RareDisease Awareness months. We proudly represent the #zebras in our dazzle.

Our logo was designed by our founder, Amanda Aikulola in 2015