DSN Blog Recent Posts

October 26, 2019

DSN seeks to support creative souls within our community through our monthly Artist Feature. Featured artists can submit images of whatever medium they express themselves through such as photographs, digital art, sketches, paintings, embroidery, and more. Artists then answer interview questions so that the community can get to know them on a more p...

October 13, 2019

In January of this year, I was asked to start volunteering with the Dysautonomia Support Network (DSN). After training, I became an admin on their most popular Facebook page, "Divas, Dudes and Zebras." It quickly became my responsibility to accept and welcome new members. Around that time, DSN was planning for their annual Neuro-Connect Summit. I w...

October 4, 2019

Last year, when it was time for DSN’s Virtual 5k, I was in a good place physically. I was able to do all of my PT exercises every day, and I built up my stamina. I worked up to riding my recumbent bike for 2 hours, walking up and down the stairs 10+ times a day, and taking up to 20,000 steps a day. I was elated. The more I accomplished, the more I...

June 20, 2019

   It has been nearly six years since I last blogged about Ehlers-Danlos Syndrome. So much has happened since then! So I thought it was time to reflect on the day-to-day with this genetic disorder. How has EDS affected me?

     My mornings are full of false starts, but eventually, I drag myself out of bed, remove my C-PAP, and make my way to th...

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