The DSN Blog

April 17, 2020

Everyone of us has had really bad, symptomatic days where even getting out of bed can be a challenge.  There are also the surgeries that always take extra time to heal from because our body does not want to play nice. Being stuck in bed can be boring, lonely and isolat...

October 26, 2019

DSN seeks to support creative souls within our community through our monthly Artist Feature. Featured artists can submit images of whatever medium they express themselves through such as photographs, digital art, sketches, paintings, embroidery, and more. Artists then...

October 13, 2019

In January of this year, I was asked to start volunteering with the Dysautonomia Support Network (DSN). After training, I became an admin on their most popular Facebook page, "Divas, Dudes and Zebras." It quickly became my responsibility to accept and welcome new membe...

October 4, 2019

Last year, when it was time for DSN’s Virtual 5k, I was in a good place physically. I was able to do all of my PT exercises every day, and I built up my stamina. I worked up to riding my recumbent bike for 2 hours, walking up and down the stairs 10+ times a day, and ta...

June 20, 2019

It has been nearly six years since I last blogged about Ehlers-Danlos Syndrome. So much has happened since then! So I thought it was time to reflect on the day-to-day with this genetic disorder. How has EDS affected me?

My mornings are full of false starts, but eventual...

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