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Going to the doctor for me used to be something I did on a whim, when I experienced sore throat or injured myself (which was a lot, growing up).  I went, paid my co-pay, briefly told the physician what was ailing me and left. I never, ever made a follow up appointment. I would follow the doctors orders till I felt better and then life would return...

March 4, 2018

DSN's very own social media director submitted her experience on what her illness has taught her.  While it may be true that we struggle, Tiffany focuses on the wisdom she can draw from her challenges. 

"My personal struggle has made me kinder and less judgmental of people. I try to do something kind every day".

This is why:

From day one, I fough...

Some Things Can Only Be Carried

Originally published April 13, 2016

Some things in life cannot be fixed. They can only be carried."
– Megan Divine

That quote. So much wisdom in so few words.

When I first read it, I breathed it in like ocean air. I read it over and over again, allowing each word to be soaked up like water to a sponge.

Some things can onl...

May 1, 2016

EHLERS-DANLOS SYNDROME: MY INVISIBLE ILLNESS (EDS AWARENESS MONTH)

MAY 1, 2015

Today marks the start of Ehlers-Danlos Awareness Month. I thought I would share with you a blog that I wrote for theHuffington Postin 2013 to raise awareness and understanding of the condition. This was back in the day when I only had one diagnosed problem. Good times!

Hand...

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