DSN Blog Recent Posts

February 1, 2019

In honor of International Zebra Day on January 28th we have decided to re-share this story by one of our members about her EDS/health journey. It's not easy, but luckily we aren't alone. 

As I sit up in the bathtub at 5:00 am trying to keep my persistent and cutting cough far enough away from the rest of the sleeping house until my next nebulizer tr...

October is Dysautomia Awareness Month and if you are reading this then you are probably a part of Dysautonomia Support Network.  DSN has been on a roll with our campaign, #sheddinglightondysautonomia. Our campaign this month is about sharing about dysautonomia and shedding light on this illness that many people are unaware of.  So, it seemed natura...

One of DSN's members, Melissa Milton, was diagnosed with Dysautonomia, and like many of us had to figure out what this meant for her life, and what she was going to do now that she was required to spend so much time lying down. Like her motto suggests, she made the most of it and found an activity that she was passionate about and could do lying do...

June 17, 2018

Editorial:  Today is Father's Day and for some of us, our fathers are our caregivers.  DSN volunteer Ambre shares some deep and vulnerable moments as she interviews her Dad about his caregiver role.  Thank you to Ambre and Dad for being so honest and sharing this part of your lives with us.  

I decided to do this post a bit diffe...

Please reload

Archive

Please reload