Board of Directors

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Brooke O'Shea

President

Brooke was drawn to DSN when her daughters were diagnosed with Ehlers-Danlos syndrome (EDS), and her oldest daughter was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), a form of dysautonomia. DSN provided the information and support her family needed during that difficult time. Brooke joined the Board of Directors in 2017 as Vice President. In that capacity, she worked primarily on fundraising efforts supporting DSN’s member programs. In January of 2020, Brooke was elected President of DSN. As President, she oversees DSN’s strategic initiatives and ensures DSN lives out its mission and values on behalf of our community. Brooke has 20 plus years of experience in executive coaching, organization development, and related human resource leadership roles. She is a CPA with a Bachelor and Master of Science degrees in Accounting from the University of Texas and a Masters Certificate in Organization Development from the University of Dallas Graduate School of Management.

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Stephanie Heape-Reller, MHA

vice president

With a passion for advocacy, Stephanie joined DSN to support patients and caregivers like herself. While advocating for her children in 2011, she found few resources to help her understand dysautonomia and Ehlers-Danlos (EDS) and is committed to making sure other caregivers and patients have the most accurate and up to date resources. Stephanie joined the Board of Directors in 2023 as the Secretary of the Board. In 2024, she was elected as the Vice-President of the Board. With experience in healthcare administration, she collaborates with DSN volunteers on marketing and business planning. Stephanie graduated from The College of Charleston with a Bachelors of Art in Political Science. She also holds a Master of Healthcare Administration from Grand Canyon University.

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Joanna Behm, EdD, OTR/L

Secretary

A patient with hyperadrenergic POTS, mast cell activation syndrome (MCAS), and hypermobile EDS herself, Joanna Behm, EdD, MS, OTR/L, COMT, CDP is passionate about helping others integrate lifestyle adaptations into their routines so they can live their best lives. Joanna has been on the Board of Directors since 2017 and involved with DSN in multiple capacities since 2014. Joanna and her team create educational content for patient handbooks. Joanna is an occupational therapist and Assistant Professor at Messiah University’s Master of Occupational Therapy Program. Joanna is passionate about researching and advancing occupational therapy’s role in treating dysautonomia. Joanna has a Master of Science degree in occupational therapy from Elizabethtown College and earned her Doctorate of Education at Northeastern University.

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ashley collins

treasurer

Living with EDS, MCAS, POTS, and various comorbidities, Ashley has adjusted her life and career to take on various passion projects, helping people and organizations like DSN reach their visions and financial goals. Ashley joined the board of DSN in 2019. As the Treasurer of DSN, she has improved the financial reporting processes and assisted in fundraising and rebranding efforts. Ashley is a seasoned finance professional who began her career running a branch of Vector Marketing. Eventually, Ashley joined a group of real estate firms, working in property sales, investment analysis, acquisition, capital management and lending, financial reporting, investor relations, and property management. Ashley rose to be part-owner and President of Boston Property Management in 2009 and graduated magna cum laude from Babson College.

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