Our Support Network

The Dysautonomia Support Network offers support and resources to individuals and families living with Dysautonomia, Ehlers-Danlos Syndromes, and related conditions in local communities in the US, as well as globally, using technology and social media to reach individuals wherever they may be at 24/7 365 days a year. We realize that everyone experience illness differently, and the need for support may change fluctuate due to health changes, or may change at different stages of your individual life journey. We offer many different levels of support and a variety of groups in hopes that you will find the perfect one or a few that are the right mix for you. We hope that this will provide you opportunities to meet others living with chronic conditions, similar to yours, that you will feel a sense of community, purpose and inspire each other as we learn together and advocate for a better tomorrow. Welcome to our #dysfamily, we are #dyssupport. Our organization is powered by our amazing volunteer team. If you have 5 hours or more a week and would like to help please fill out a volunteer application and talk to one of our senior leaders about becoming part of our team!