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Find Support

DSN's online communities offer peer-to-peer support in a welcoming and private environment where patients and those impacted by dysautonomia can share their knowledge and experiences, give encouragement to, and simply connect with one another.

“Being a member of Dysautonomia Support Network’s Facebook Global Community has introduced me to patients who are always incredibly generous in sharing their knowledge, experience, resources, time, and community. Their clubs are a lot of fun and their resources are great. Everyone is so kind and helpful.” - Jill B.

U.S. Regional Support Communities

DSN offers four Regional Support Communities in the United States. These communities serve to help people impacted by dysautonomia find and connect with others who live within their region of the U.S. Members of the Regional Communities collaborate to host events and activities, both educational and social, online and in-person.

Reference the map to find your community. Click on the region title to submit a request to join. U.S. Regional Support Communities are facilitated through closed Facebook groups so the group administrator will review your request to join and your answers to a few questions and welcome you into the group as soon as possible. Contact our Administrative Manager with any questions or concerns.

“Being a part of this organization has made the difference between just living with this illness and wanting more despite my illness. Living with dysautonomia is overwhelming, exhausting and lonely. With DSN we are able to reach others and provide the support they need so they are not alone. Your tribe is here when you need support and that is a great feeling when experiencing a major life disruption.”

Global Communities

Dysautonomia Support Network hosts and facilitates two online Global Communities: DSN Facebook Global Community and Inspire Global Community

Facebook Global Community

Our DSN Facebook Global Community provides an encouraging environment to connect and share experiences with other people impacted by dysautonomia from around the world. This is a closed group so once you request to join and answer a couple of questions, the group administrator will welcome you into the group as soon as possible. Contact our Administrative Manager with any questions or concerns.

nspire Global Community

Our Inspire Global Community offers a way to connect with others confidentially. Inspire community members provide resources to help members gain access to relevant and up-to-date medical and lifestyle-related information. To join the Inspire Global Community, register for an account by visiting Inspire’s DSN Community Registration Page. After completing the registration form, you will receive an email from Inspire to activate your account. For questions or concerns, contact Inspire.

We invite you to join one or both of these groups. We look forward to meeting you! 

“Living a life with chronic illness filled with questions and uncertainty, knowing there is a place with reliable information, understanding kind words and a feeling that someone in the world is there all the time who feels how you feel...not just invaluable, it’s been life saving for me!!” - Dawn M.

Special Interest Communities

To meet the unique needs of certain groups, DSN offers Special Interest Communities. These communities are facilitated through closed Facebook groups so once you request to join and answer a few questions  via the group on Facebook, the group administrator will review your request and welcome you into the group as soon as possible. Contact our Administrative Manager with any questions or concerns.

“DSN is a wonderful positive family environment.” - Shawn S.

Lifestyle Clubs

While dysautonomia can have a significant impact on one’s lifestyle, it does not need to define the lives of those impacted by it. DSN Lifestyle Clubs give members an opportunity to explore and develop interests and talents with other members who understand the challenges a chronic condition can pose on pursuing those interests and talents. These clubs offer a forum to learn, share, and discover new ways to move towards a healthier and happier lifestyle. Lifestyle Clubs are facilitated through closed Facebook groups so once you request to join and answer a few questions the group administrator will welcome you into the group as soon as possible. Contact our Administrative Manager with any questions or concerns.

“Where validation and understanding occurs! P.S. It’s not anxiety!”- Sandra M.

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