Get Involved

If you or someone you know is interested in giving back to DSN, there are several ways to get involved.


The growth and sustainability of our organization depend upon the people who generously give their time and effort to support and empower others who are impacted by dysautonomia. DSN is looking for driven, compassionate, and enthusiastic individuals to join our team. If you or someone you know is interested in working with DSN, there are two ways to get involved: as a volunteer or as a consultant.

Volunteers and Consultants receive training and ongoing support in these roles. If you have any questions about volunteering or consulting with DSN, reach out to our Administrative Manager. Volunteer and Consultant roles require an average time commitment of 3-5 hours per week.


DSN volunteers are patients, caregivers, and supporters dedicated to helping those with dysautonomia live their best lives. DSN volunteers support members every week by managing various responsibilities and activities associated with the Communities, Lifestyle Clubs and other key areas of management needs of the nonprofit. Volunteers play an important role in raising awareness and helping to uphold the community standards of DSN.

Volunteer roles we are currently seeking include, but are not limited to:

  • Graphic Designers
  • Facebook Community Moderators and Engagers
  • Virtual Group Meeting Hosts
  • Social Media Facilitator
  • WordPress Facilitator
  • Data Analytics Facilitator
  • Grant Writers
  • Fundraiser Facilitator
  • College Interns
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DSN Consultants are key members of our Education and Awareness Team. This team’s mission is to curate and create educational content and resources related to understanding dysautonomia in all its various forms, with the specific purpose of enabling members to confidently and effectively manage their journey with dysautonomia. These resources are also critical to our awareness-building efforts within the medical and local communities.

Consultants are students or professionals in their fields who may or may not be patients or caregivers. They use their unique skills and qualifications to work with the Education and Awareness Team on a project-by-project basis. Please note that Consultant roles are voluntary and unpaid.

Explore the expectations and responsibilities of consultants in depth by referring to the relevant documentation. For additional details, please consult our Non-Disclosure Agreement (NDA).

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Healthcare Professionals

  • MDs/DOs/Medical Students
  • Registered Nurses/Advanced Practice Registered Nurses in various fields with experience in research, education, community health/outreach
  • Physician Assistants/Nurse Practitioners
  • Physical Therapists
  • Occupational Therapists
  • Respiratory Therapists
  • Pharmacists
  • Psychologist/Counselor/Mental Health Professionals
  • Speech-Language Pathologists
  • Nutritionists/Registered Dieticians
  • Social Workers


  • K-12 Teachers
  • Special Education Teachers
  • Instructors in Higher Education
  • Administrators/Staff in K-12 or Higher Education
  • IEP Coordinators
  • Disability Coordinators
  • Researchers

Other Roles:

  • College Students & Student Interns
  • Graphic Designers and Publishers
  • Data Analytics
  • Social Media Consultant
  • WordPress Managers

“In trying to find tips and tricks to share on social media for DSN, not only have I found ideas for others but have also found ideas that I can try for myself. In conversing with community members and running different questions through the communities I get many ideas directly from those who have similar if not the same issues.” - Kelly

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