Our Leadership Team

Volunteer Coordinator

Volunteer Coordinator

Sarah Anne

Sarah identifies as an intellectual, nerdy, spiritual, Jewish, girly-girl. She loves accessories and will gladly attend any event that’s an excuse to dress-up or show off her awareness gear. She is also a self-proclaimed math/science nerd with a Bachelors in Physics and a Masters in Geoscience. Professionally, Sarah is a math and science educator. She teaches mostly in settings mostly outside typical classrooms and will readily share her passion for a subject with you outside of work. She likes discourse and debate, deep conversation, and being challenged to think about new things or old things in new ways.   


Sarah has been an advocate for people with disabilities since childhood when your younger brother Joshua was born. Since her diagnosis of Dysautonomia, Neurocardiogenic Syncope, hypermobile Ehlers Danlos Syndrome, and Mast Cell Acvtivation Disorder; she has become an advocate for herself and others with these conditions. She brings this passion to her role in DSN as the Volunteer Coordinator.

FB Support Communities Coordinator

FB Support Communities Coordinator

Kimberlie

Kimberlie lives in Brenham, Texas. She does not personally have Dysautonomia, but three of her kids do.  Kimberlie is an ARD Facilitator at our local high school and loves what I does. She has four girls ranging in age from 18-24, and they are all home together for the first time in 6 years.  She started as a moderator in her local community and then started writing content for social media.  Now serving as the FB Communitties Coordinator, she says, "I just want to do what I can to help people and maybe bring a smile to someone that might be struggling through life these days!" 🙂

FB Scheduled Posts Coordinator

FB Scheduled Posts Coordinator

Traci

Traci lives in Florida with her son, dog, and 3 cats. She has a background in teaching and has a love of music. Traci is a singer and plays 6 instruments. She enjoys knitting and tending to her garden. Traci is also a published author.


After living most of her life with health problems that everyone around her said were 'made up,' she was finally diagnosed with Ehlers-Danlos Hypermobility Type, POTS, small fiber neuropathy, and Mast Cell Activation Disorder. Suddenly, everything in her life finally made sense. Looking for support, she joined DSN to help others. 

Education & Awareness Team Coordinator

Education & Awareness Team Coordinator

Leslie

Leslie lives in Delaware with her service dog Bryn and her grandmother, Olive. She has her bachelors of science in nursing with experience in critical care and hospice. In 2014 her world came crashing down with uncontrollable passing out, multiple head injuries and intractable migraines. Through her journey to determine what was going on, she learned she had dysautonomia and all of a sudden, found herself learning how to manage multiple chronic illnesses. Since then, she has been on a quest to learn how to better listen to her body, work on self-care, and work hard to rehabilitate her body. She is thankful to have an excellent medical team that encompasses both mainstream medical as well as alternative medicine and has seen some neurological improvement through functional neurology. 


Leslie is passionate about dysautonomia awareness, self-advocacy, and encouraging. No one should ever have to go through this alone. She firmly believes everything happens for a reason and is thankful for the ability to volunteer with DSN and the platform it provides.