​Our Mission, Values, and Objectives

Mission

 

DSN is a U.S. based, 501 (C) (3) non-profit organization. Our mission is to provide support, resources, education, and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation, and Gastric Motility Disorders.

 

In working with other organizations, together we are aligning to increase the scientific understanding of the relationship between dysautonomia, and related conditions in the hope of finding new treatment options.

 

We strive to improve the quality of life of patients worldwide by increasing understanding, awareness and access to appropriate medical care for all patients. We aim to dispel the misunderstanding and prejudice that many medically complex patients face in medical settings and in society as a whole.

 

 

Values

 

We are committed to using open, accessible, communication, using technology to advocate, educate and empower members, volunteers, and providers with the highest standards of safety, integrity, and transparency with a collaborative approach to improve the patient experience in an inclusive environment with respect for all individuals.

 

 

Objective

We help patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic community for those living with chronic illness and pain. We increase confidence and independence in our members by supplying them the tools, support, education and resources they need to adapt to life with chronic illnesses while challenging themselves to set new goals despite their physical limitations.


Toward this end, we provide scholarships for education and grants for service dogs to enable our members to actualize their dreams.  We offer closed support groups and lifestyle clubs that provide our members with a safe space to discuss their conditions, goals and their lives.